For many, a menstrual period is a cyclical event, but for TikTok user Poppy, it has become an unending ordeal, lasting over 1,000 days. This distressing situation has not only impacted her quality of life but has also left medical professionals puzzled.

The Initial Diagnosis and Ongoing Struggles

Poppy’s journey began three years ago when she started experiencing prolonged bleeding. Although she was diagnosed with polycystic ovary syndrome (PCOS), doctors stated that this condition was not the underlying cause of her continuous bleeding.

Despite numerous medical consultations, extensive imaging studies, and various treatments—including both hormonal therapies and intrauterine devices—Poppy has seen little to no relief. As she candidly shares her experiences on TikTok, she highlights the severity of her symptoms:

“I’ve had every test, every treatment, every medication they can offer me,” Poppy said in a video. “My iron levels? Rock bottom. The cramps? Awful. All of my muscles hurt, my bones hurt. I have constant headaches, constant nausea.”

Uncovering the Potential Cause

After nearly 950 days of this relentless cycle, Poppy received a significant revelation partly due to input from her social media followers. She discovered a potential link between her symptoms and a congenital condition known as a bicornuate uterus—something that had been visible in her very first ultrasound.

“It was picked up on the very first ultrasound I had, and no one thought to mention it to me,” she stated in her recent video.

Understanding Bicornuate Uterus

A bicornuate uterus is a rare anatomical variant in which the uterus is heart-shaped instead of typically pear-shaped. This condition occurs when a woman is born with a uterus divided into two cavities, which can lead to significant menstrual and reproductive health issues.

• It affects less than 0.5% of women.
• Common symptoms include prolonged menstrual bleeding, heavy periods, and severe cramps.
• Other potential complications can encompass chronic pelvic pain and risks during pregnancy, such as miscarriages and preterm labor.

Next Steps in Poppy’s Journey

With the potential diagnosis in hand, Poppy is taking further steps to understand her condition. She has scheduled a comprehensive hormonal assessment to identify any imbalances contributing to her ongoing issues. Additionally, she plans to remove her IUD, which has not provided the anticipated relief. Healthcare providers will conduct a dilation and curettage (D&C) procedure to remove any abnormal tissue from her uterine lining.

The hope that shines through her journey is the possibility of corrective surgery for her heart-shaped uterus. The thought of finally experiencing life free from daily bleeding is something she describes as “heaven.”